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Alex the Boy from the publisher

JeffsLife
Friday, 23 March 2012
Bolt On

 

Alex slams shut our bedroom door just short of 8 a.m. Something tells me to get up. I don’t, though, and a few minutes later I hear a door shut in the hall outside our apartment. That slam I’ve heard before. The stairwell of our building is across the hall; all you can say is that Alex has never left our apartment building.

 

"Get a lock he can't open!" some have said. Great theory, but again autism proves to us how we’re in a new world: Fire regs forbid a key padlock on the inside of an apartment door.

 

“Regulations” and almost everything connected with the real world seems like mist as I get up and check the rooms of our apartment. “Alex has bolted!” I announce to the form of Jill there in the bed. I could’ve hit the sleeping Jill with a bang stick, but these words get her up quicker.

 

Soon I’m out in the hall. I hear a door slam upstairs, yet I stick to my search procedure of taking the elevator to 15 and then down floor by floor using the stairs. (Stupid dad.) On the 10th floor I find – at this insanely early hour – a delivery man, and then I see a door open down the hall, the lights bright inside and the wood of the floor sparkling new. I hear a woman speaking.

 

 “There’s a strange autistic boy in my apartment ...”

 

Bingo! My life has become saying bingo! to myself on seeing a door open at an insane early hour and hearing a woman saying “strange autistic boy.”

 

“He’s my son,” I tell her. “I’m so sorry…”

 

“I was expecting people,” she says, “so I opened the door and he barged right in!” I peer in and see Alex at her shiny redesigned kitchen counter, standing there with his iPad like someone who will never own a kitchen like this.

 

“That’s all right,” she says. “No problem.”

 

“Alex, come out of there right now!”

 

He does. I’m sorry! he keeps saying. He hugs the woman’s arm. I’m sorry. I take him home feeling like Tom Cruise in Rain Man in the intersection scene. Next day we send a note to the neighbor and slip it under her door: “Hi. I am sorry I came into your home on Sunday. Thank you for being so understanding. Alex…” I have him write it until I see the M and the S just look too … what? Abnormal? Dangerous in an “Oh my God he lives just floor from me!” kind of way? I write the note for him to sign; he does sign his own name.

 

We have tools to keep him here that we didn’t have last summer when he bolted. The iPad, for one. I don’t believe he’ll leave the apartment without it (“I think he will,” says Jill…), so instead of leaving it on the dining room table overnight to charge, I charge it on my bedside table. I also place a chair in front of our door before going to bed and on the chair stack empty tin cans. He’ll accidentally knock them over and make a racket. Solid theory.

 

Stupid dad. How long before he learns to silently remove the cans? Stopping Alex with a contraption is like firing a phaser at a Borg: You get one or two shots at most before he adapts and continues his relentless advance.

 

Please send comments to jeff_stimpson@yahoo.com 


Posted by Jeff Stimpson at 4:57 PM EDT
Updated: Friday, 23 March 2012 4:59 PM EDT
Sunday, 18 March 2012
Open Wide

 

 

The Cartoon Network blares over the chair from a TV to distract kids. This practice understands kid patients, I’ve learned over three or so appointments. They especially understand kid patients with special needs.

 

“Daddy’s right here with you,” the dentist says to Alex, who hates the Cartoon Network. I consider asking if they can put on Elmo.

 

 

“Open wider, Alex.” I forget how we found this dentist, but on our first appointment he told us how he’d had a condition when he was younger and it gave him insight into kids like Alex.

 

 

This time, Alex won’t sit down, but jumps up to pick a penny toy from a nearby basket. “Go to the bathroom!” says the Big Staller.

 

 

“Hurry up, Alex,” I tell him in the bathroom. “The doctor is in a hurry…”

 

 

Back to the chair. “He’s crowded,” the dentist says of Alex’s jaw, “and his wisdom teeth will be coming in between ages 17 and 25.” Rapture. 

The dentist braces Alex’s head with his forearm; Alex’s mouth is a tight oval, though I keep saying “Open wide like this, Alex!” and stretching my mouth into an elaborately  huge maw. Alex lifts his shoulders off the dentist’s chair. “Kiss the straw,” the dentist tells Alex. The straw is the suction. We all know the whine of the suction, and Alex’s head pops far off the pillow and his legs pivot off the chair.

 

 

“He’s a lot stronger,” the dentist notes. The dentist sees no spots; spots are decay. Bad teeth, so far, is one mess Alex has dodged.

 

 

We used to take him to an agency’s dental clinic; the service was free and the doctors were great, but they changed every appointment. We figured Alex would be calmer if he saw the same face looming over the pick every six months. As his legs pivot farther off the chair, I wonder if the same face makes much difference.

 

 

The dentist touches the pick to Alex’s fingernail; Alex seems to accept the sensation. “It’s just going to be a little scraping. Just a little scraping. Open wide so I can see…” The dentist locks Alex’s head in his crooked arm and touches pick to teeth and gums while Alex keeps saying Nooooo!” I hold Alex’s wrists until the hands turn pink. After a few minutes I have to hold his hands tightly, then in a few more minutes I just have to hold his hands like I do when he’s going to sleep. Blood runs in red fangs between Alex’s teeth; I see yellow patches that not long ago must have been Utz Dark Special pretzels. “See that?” says the dentist, holding up the pick to let me see the red dot on the end. Gross. “That’s build-up. But overall he’s doing very well brushing.” I tell the doctor we’re also into flossing a little bit and use a fluoride rinse.

 

 

“Alex, you’ve gone through so much worse than this,” I say. As usual at the dentist’s, the guy sitting in the chair under the Cartoon Network doesn’t care.

 


Posted by Jeff Stimpson at 6:02 PM EDT
Updated: Sunday, 18 March 2012 6:04 PM EDT
Monday, 5 March 2012
Jobs to Do, Part 2


Alex’s service coordinator dropped by his school the other day. “Alex seems to be doing well there,” she e-mailed. “He was sweeping the floor when I arrived.”

 

Really? I thought, looking at the crumbs on our living room floor. Knew I had kids for some reason! 

 

We’ve covered jobs Alex does now: setting the table so the handles of the coffee cups face the same way; emptying the dishwasher every morning. I get the feeling he has the skills. “Alex,” I ask as he tucks in the sheets at the foot of his bed, “would you like a job?”

 

I expect him to parrot back something like, “Like a job?”

 

“A job to do,” he says, tucking.

 

We all have a job to do, but sometimes the job doesn’t find us. Writers know about this; I hope Alex doesn’t have to know about it, too. He could probably scrape by the next six or so decades on what amounts to the pure compassion, maybe the pity, of society. I’d prefer, however, that he learn about that spring in the step after a day of good work you enjoy. He has the skills, I think.

 

Some people also have the attitude, like when a teacher from his school went into a local thrift shop to ask about employment for her students. “We don’t hire the handicapped,” she was told.

 

“We don’t actually use that term anymore,” the teacher said.

 

“Well whatever you call them, we don’t hire them!”

 

(Not to blame anyone, but the initials of the name of the thrift shop are H and W and it’s on East 23rd Street in New York.)

 

LinkedIn connection Jennifer tells me her son started as a cart attendant at a local Target; after three years they added “sales floor” to his cart duties. “He also straightens the store, stocking and fronting items,” she adds. Jennifer advises parents in my position to connect with local stores, making introductions early with businesses that would accept a person with a disability – “really ‘accept,’ not just legally.” Around a student’s junior year, work with a vocational rehab department to secure a job coach and internships.

 

Jennifer’s son had some “less-than-perfect” jobs before Target, she stresses, “so stay positive and keep pushing.”

 

I wish I pushed Alex more. The dishwasher is a dawn routine now, true, yet often simple sweeping of the crumbs slips my mind. Instead, I think how he’s on his iPad watching too much “Sesame Street,” and I let him alone. I’m not together enough to be Alex’s dad. I’m not smart enough for this job.

 

(PS: I went to the following site to pluck quotes and such, but it seems too good to offer except in its entirety: http://dps.missouri.edu/Autism/Adult%20Autism%20&%20Employment.pdf . Comments are also welcome at jeff_stimpson@yahoo.com ).



Posted by Jeff Stimpson at 2:30 PM EST
Updated: Tuesday, 6 March 2012 7:20 PM EST
Monday, 27 February 2012
Two of a Kind

 

To Alex I give the command typically heard on a school morning: “Put on pants, socks and shoes.”

 

There’s this thing about the socks. Most people wear a pair that resemble each other. Alex doesn’t.

 

I take inventory of his sock drawer. Balled up:  the green and dark-blue “Sunday 7” socks Jill bought at H&M. Separate: A pale green and a pale blue, each with white stripes. The black and orange I would wear if they were big enough. The “Monday 7.”  The blue and black “Wednesday” (how come no number?). The “Tuesday 2,” the brown one with the white stripes. Here’s this weird multi-colored one that looks like a German fighter at the tall-end of World War I.

 

Why is there always this yellow and black “Saturday” without a partner? I collect a pile on my knee of those 10 socks whose partners have been plucked, alone and ragged out, by an autistic young man.

 

Jesus, the other blue and black “Wednesday” in the bottom of the drawer. I ball them up. I find the dark blue ones with the light-blue stripes in the dark confusion of the opposite ends of the drawer, Lovers lost in a way to shatter a heart. I ball them up feeling a little like God. And there’s the light blue one with white stripes! I ball it up with its partner – not that Alex will keep it that way on the school morning of school mornings.

 

I’ve given up trying to match them when doing laundry. I drape the socks over the bars of the laundry cart one by one, each seeming to hope for their old partner or, as we all do in our hearts, hoping for a partner new and thrilling. Why is two of a kind beyond Alex?

 

He’s had clothing obsessions. Once upon a time it was black T shirts. His current one is khaki pants. Next? Some of the garments bear the fading STIMPSON of summer camps over the past few years.

 

How does Alex look to the world in mismatched socks and the old, short Kmart khakis, the only ones he’ll wear until they rag out? Does the world understand that? Does the world understand how he looks, and what do they think of me as I begin to rag out myself?


Posted by Jeff Stimpson at 8:30 PM EST
Updated: Monday, 27 February 2012 8:31 PM EST
Wednesday, 22 February 2012
Down Mexico Way

 

Jill’s gone to Mexico for a week. To me falls the ringing of the alarm, the shooting up in the middle of the night to make sure Alex doesn’t wrench open the front door and bolt to someone else’s apartment. That’s what I was afraid of most this week: the middle of the night.

 

I’m used to getting them off to school, because I just like the dawn hours. The alarm, groaning myself upright, rousing Alex first because he leaves half an hour before Ned. Dissolving Alex’s vitamins in water in the little metal cups, inching him from the bed to the couch to the dishwasher, which he empties.

 

True, it does leave my days to me with no cleaning up in the apartment until about two days before her return looms. The boys miss mom, though. “Ned, do you miss mom?” I ask. “YES!” comes the reply.

 

Jill took Ned’s Netbook to Mexico but forgot the power cord. “My Netbook’s dead, she reports via email on the first night. Other e-mails follow. “I’m pissing away precious Mexico time sitting in a motherfuckin-” (you kiss my children with that mouth?) “-mall in Cancun …”

 

“But it’s a mall in Mexico!!!!” I write back.

 

Her: “I hope you are having a good time while I'm away. I think hot dogs for dinner was mentioned? And The Great Waldo Pepper?”

 

Me: “I watched The Great Waldo Pepper. I’ve given up trying for movies for Ned until he’s about 17, when he won’t be speaking to me anyway.”

 

Mexico doesn’t do it for me. I’d prefer London, assuming I’m ever in a position to mention with any dignity to my wife and children that I want spend the money to head to England for a week. Jill loves and deserves Mexico. She loves speaking Spanish, knits in the sand, and has rowed the oar of salary for months for this family.

 

She e-mails pics. “Bully sleeps in.” “Bully on the plane.” “I'm going to send a pic of Bully passed out! Not pretty! Don't show Ned!” Bully is a little stuffed red bull.

 

“Bully is having a good time! He says he will drink less today! I’m wearing my swimsuit and drinking beer.”

 

I’m tired after getting up at six, but I fire back, “I’m wearing your bathing suit and about a drink a beer.”

 

Someone she’s with e-mails a pic of her knitting on the beach. The sand looks like powder. Her sun visor sits low over her eyes. She wears a big smile. It’s a week of realizing what life would be without Jill, of realizing that I still remember when she didn’t know my name.

 

Me: “That was a pretty picture of you on the beach.”

 

Her: “Best thing about leaving here: Seeing you. Miss you a lot.”

 


Posted by Jeff Stimpson at 5:08 PM EST
Updated: Wednesday, 22 February 2012 5:10 PM EST

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