Morning of Plastic

 

Alex was to head for his school bus at 7:15. At 7:05, I heard those soft, dreaded syllables.

“Leopard?”

“Alex-”

“Leopard? Aw, lep – pard…”

“That’s okay, Alex. Let’s go get the bus. Alex, let’s go get the bus. Alex, c’mon.”

“Leopard?”

In the next 600 seconds, nothing else fills the universe but that 5-inch-long plastic leopard. And it’s missing. Nothing matters: Not the bus waiting downstairs, not going to school, not mom and dad yelling and not even Alex’s own realization that he’s doing something wrong.

I read once about what might go through the mind of Alex and people like him in such moments: Please don’t think less of me because I need to line things up in rows on all the furniture and need one of them with me sometimes. This is how I process knowledge. (Jill calls it “autism decorates.”)

Well that’s great, Alex, but you have a bus to catch now. Just grab some other animal. Here’s that raccoon you drove us crazy about two nights ago when you couldn’t find it. Remember? Why so goddamned picky this morning?

Just am. He knows he has the power to stop life. I despise him a little for whipping it on us so so often until we almost panic at again being caught between what Alex wants and what the world expects of him. Even if we find it, we accomplish nothing.

I start to yell – often my first parental impulse – but I’ve been here before. Nobody really beats autism. My tone is firm, stern. “Alex get yourself together and let’s go. The bus is waiting.” My tone is wise, deep, clear of panic.

A few minutes later, returning upstairs from telling the school bus to drive on, I hear Jill from as far away as the elevator. “You have to go to school,” Jill says to him. “I’m very angry with you, Alex. Very angry.”

She isn’t exactly yelling; nobody, not even Alex, could mistake her tone but she isn’t exactly yelling. “I’m sorry,” Alex says, patting her arm. “I’m sorry. Go to school.”

“No, Alex,” she says. “The bus is gone.”

Commonly some children with Autism Spectrum Disorders (ASD) autism “show an intense interest or preoccupation with an object, toy, video (or) task,” writes Dr. Judy Reaven, clinical psychologist and associate professor of The Children’s Hospital and the University of Colorado School of Medicine, on Autism Speaks. “It is sometimes difficult for parents to distinguish if the preoccupation is a characteristic of autism or a behavior associated with Obsessive Compulsive Disorder (OCD).”

Sure is, especially when Alex’s school bus just (LEFT).

“A number of psychological disorders frequently co-occur with autism. But it’s also true that some symptoms of autism overlap with those of other disorders such as OCD. So it can be difficult to distinguish those that are related to an individual’s autism from those that are part of another condition.”

Oh good, another condition. Alex’s many many animals stare at us from their rows on the edges of our furniture. As I’ve said before, they’re detailed down to the ruffles in the fur and the shine of the eyes, and somewhere in their rows is Alex’s idea of order. Sometimes he wants the “potomus” and sometimes the regular tiger. Whatever letters apply to what he does on these mornings, Alex’s condition seems to make him do something I really want to sit down and talk to him about.

I surrender immediately. “I’m sorry, I’m sorry,” Alex says to us, patting and patting our arms. “I’m sorry. Go to school?”

“No, Alex,” says Jill, “the bus is gone.”

“Go to school?”

“The bus is gone.” She hits gone with a deliberate pitch, parent-to-parent intonation for what I the experience dad see as pretend anger and concealed intent. “Go to school? Go to school?”

(Later I tell her about hearing her from the elevator. “If people don’t like it,” she says, “let them get their own child with autism.”) Surrendering makes me feel comfortable but I don’t want it to become habit. I catch Jill’s eye and shoot a half-hidden thumbs-up as she works him over with her voice, never yelling but stern, mixing needle and caress.

“I’m sorry. Go to school?”

“Alex, when you have somewhere to go you just have to go and then try to find what you want later.”

“Wantyouwant a-later,” he says to me. “I’m sorry, I’m sorry.” Pat pat pat. “Thank you, daddy.” Is he starting to realize, finally, that some action he lets himself take eventually hurts him? Isn’t realizing that how most people just get through a normal life?

We have a clean and quick subway ride to school. Alex even gets a seat. I stand over him and he offers a barrage of “I’m sorry…” before he says again, “Thank you, daddy.”

When we get off the train we’re about a block away from Alex’s school when he hoists his arm and says, “Puzzle?”

“We’re not stopping to buy you anything, Alex.”

“Puzzle? Puzzle.”

“C’mon.” We enter Alex’s school and start toward the stairwell leading up to his floor. On the way he swerves into a therapy room, dashing past the therapist (“Good morning, Alex!”) and to the cubbies of puzzles.

“OCD is often confused with the special interests or preoccupations characteristic of autism,” Reaven writes. “We have a wealth of research showing that cognitive-behavior therapies can help individuals with autism manage OCD symptoms. These include helping the person become aware of obsessive thoughts and compulsive behaviors and label them as such.”

Sounds like such therapy might work for Alex as soon as he learns to conduct a conversation beyond “’potomus” and “puzzle.” Overlapping layers sure bury stuff deep. Still, we do need something around here besides surrender.

When I get home on the leopard evening, Jill works on her laptop at the dining room table. On the other end of the table, flanked by the raccoon and the moose, sits the leopard. I point it out to her.

“Where’d we find it?” she asks. “I have no idea,” I say.

(Read Dr. Reaven’s full article here: http://www.autismspeaks.org/blog/2014/05/16/mental-health-awareness-month-it-ocd-or-%E2%80%98just-autism%E2%80%99)

 

Just Friends

 

Social service agencies have a good bead on Alex. Somewhere in the photocopied, crooked lines of one of his service plans, for instance, is the line, “Alex Stimpson doesn’t have a best friend.”

Alex does ask for Ned, for daddy and mommy and Aunt Julie and for grandpa’s lake house. In that house Alex can glance at most of his loved ones in one convenient corral and then go back to the iPad until it’s time for his drive to Michaels.

We headed to the lake house for the Fourth. Ned brought a friend to go swimming in the lake, canoeing and tipping over the canoe followed by more swimming in the lake. Aunt Julie brought a friend, Carl. Carl comes for many Independence Days. Ned also likes Carl very much as Carl lives in the South and usually brings explosives.

Alex notices fireworks. This year he seemed edgy, refusing to sit on the dock and continuing to try to tug me and Jill back to the house. In the glow of Carl’s explosives Alex’s face is sharp and attentive; his eyes catch the sparkly details against the summer night sky (and this year anyway, chose to disregard them) and he looks like an otherwise normal teen who just happens to rarely speak sentences.

You need sentences to get by in this world; you need sentences to make friends. “Autistic individuals typically have problems interacting in normal social environments. This leads some parents and professionals to think that they are naturally antisocial,” reads the abstract of “Six Principles of Autistic Interaction” (http://www.jamesmw.com/sixrules.htm) by James Williams, a Chicago-area writer with high-functioning autism.

I wouldn’t call Alex antisocial, more like social in a skewed way. He seems to speak someone’s name more when he’s not with that person. When school’s out, he often speaks names of classmates, usually preceded by “Bye bye!” or “Have a good weekend!” (He also frequently speaks his own name with those phrases.) “Bye, Ju-ann. Bye, Eloran” he says over a video of kids and a school bus; his finger touches the picture of the boy boarding the bus. “Bye, Eloran.” (Alex stresses the bye, puts a spin on the word as if to say, There. I took care of that.) Is this part of Alex truly friends? Part of him arranging classmates in his memory the way he lines up little plastic animals on all the furniture? Or just part of his general unraveling during school breaks?

When kids from the building drop by to see Ned, Alex hangs around, too, bobbing and weaving to a song on his iPad. If one of the visitors is a girl and it’s around Alex’s bath time, I position myself nonchalantly near the bathroom door to make sure Alex doesn’t fling it open stark naked. If Jill asks Alex to dance and share his music, he will for a moment, dutifully, then take his device and his joy and politely disappear into his bedroom. All for interacting,, he seems to say, to a limit. If something goes wrong Alex will come to pat your arm (sometimes a little hard) and pat and pat and say, “I’m sorry” even when it isn’t his fault.

“Non-autistic people often forget how complex social skills are, and how long it takes to learn them,” they write on the site Autism Helps (http://www.autism-help.org/communication-autism-making-friends.htm). Skills to make friends include knowing how to enter into other children’s activities or how to welcome other children into games or activities, and recognizing when and how to help others and seeking help from others. “Autistic individuals, if allowed to interact with other autistic individuals, develop complex friendships that are based on social rules that are unique to autistic relationships,” Williams writes. “When two autistic people who are fit for each other interact, there typically are several principles they use when socializing.”

At a New Year’s Eve party, Alex met Eric, who is also solidly on the spectrum. Alex had been weaving person to person, displaying his pretzels, strapping paper hats on guests both willing and un-, heaping chips on flimsy plates and scanning the kitchen for a back door to bolt through. When Eric arrived, Alex paused as if spotting an expensive hoodie of his favorite football team. He looked into Eric’s face and touched his arm.

They separated quickly but I don’t often see that spark of connection between Alex and most strangers. Maybe Eric reminded Alex of a classmate? Bye, Eric, bye…

“Their impaired ability to perceive and respond in socially expected ways to nonverbal cues can lead to conflict or being ignored by others,” adds Autism Helps.

“Maybe you can take Alex to the Mac store,” we tell Tina. “He can teach people how to use iPads.” He asks for the adult companions Jill and I hired to watch him and keep him company when we’re working: Tina (not her real name), Danny (not his real name) and Abby (not even close to her real name). He always asks for them by his name for them, his way of asking when he’ll see them again. He seems to look forward to seeing them, maybe because with them Alex is never something he is with many people. Alone.

Taxing Time

 

I wish could deduct those twenties I hand to off-the-books caretakers every week because my 16-year-old son can’t get off the school bus and be home alone for two hours. I also wanted to post this piece three or four months ago as everyone sweated over 1040s. Most days I was too busy, though, earning the money to pay the self-employment taxes on the extra money I earned to pay the taxes.

The National Association of Tax Professionals notes, “Because having a family member with special needs can be costly, it is particularly important that these families take advantage of all the tax deductions and credits to which they are entitled. Unfortunately, many taxpayers who qualify for these tax breaks are unaware and fail to claim them.” Maybe because he’s scurrying on a 90-degree day to find Alex only Utz Extra Dark Special pretzels or only Weaver chicken nuggets. God knows we all deserve some kind of break.

Here’s a roundup of tax deductions designed to help special needs families. Take a few on your next tax return and watch friends and neighbors with typically developing kids call you “lucky.”

Nutritional supplements are deductible when recommended by a doctor for treatment of a specific medical condition only. (What does the IRS have against The Vitamin Shoppe?) Special diets (such as a gluten- or casein-free) are partially deductible. Alex’s diet fits none of these conditions but I still figure Utz Extra Dark, $2.99 a bag ($2.49 on sale), say 2.5 bags a week times 52 weeks lops $300.70 off the top of my tax bill. I’ll eat the cost of both Alex’s Chips Ahoy! and most of the Chips Ahoy! themselves.

See a diet-deduction worksheet at http://www.tacanow.org/wp-content/uploads/2012/10/GFCFSF-Foods-Tax-Deduction-Worksheet.pdf . Attach a letter from your doctor to your tax return, the letter stating that your child suffers from a medical condition that requires a special diet.

Special schooling, including tuition or tutoring by a specialist to meet your child’s needs. Primary reason for the school must be to alleviate or remediate the disability.

Medical expenses exceeding a set percentage of your adjusted gross income (AGI). The IRS proclaims that medical care expenses “must be primarily to alleviate or prevent a physical or mental defect or illness.” I don’t make many medical deductions; for autism, there is no cure. It does seem that for tax purposes a sprained thumb is worth more money than a lifetime of watching Elmo and rocking on my couch.

For 2012 and prior years, medical expenses for most taxpayers were limited to the amount in excess of 7.5% of AGI; Obamacare bumps that limitation to 10%. Real change or a sop? Who cares?

Medical aids such as ramps or roll-in showers are fully deductible as medical expenses. Expenses that are merely beneficial to general health, such as vitamins or vacations, are not. I see the sense in that vacation one and yet, for special needs families, I sure don’t.

Car expenses for medical transport or medical trips. Actual gas and oil expenses, or use the medical mileage rate set by the IRS every year. (See  https://www.familychildcaretaxes.com/tax_tips_article.php?blRecordNumber=93.) You can add parking fees and tolls to the total but not insurance, repairs and depreciation to the car. Your personal depreciation is your problem.

Lodging for medical trips but only under certain circumstances and not to exceed $50 per night per person, including someone traveling with the person receiving the medical care. Meals are not deductible. Seems about right. They say the Dow will hit 20,000 by 2016.

Equipment or devices used primarily for alleviation of a person’s illness, such as special bedding or car seats. Does a new iPad count?

Distributions from a qualified retirement plan or individual retirement account before you turn 59½ and used for medical expenses that exceed 10% of your AGI do not incur the normal 10% penalty.

Home improvements to the extent they exceed any increase in the home’s fair market value. Certain improvements (such as altering the location of or otherwise modifying electrical outlets and fixtures) are deemed to have no affect (sic) on the home’s fair market value and thus, the full cost can be claimed as a medical expense. Don’t understand this but I suspect, as with much of our tax code, I’ll never see a penny from it.

Other items such as medical insurance premiums, diapers, lab fees, specialized medical equipment in the home, medicines, costs of professional services and advance payments for lifetime care of special needs dependents.

Impairment-related work expenses. Employees with a physical or mental disability that limits employment or one or more major life activity may be able to claim impairment-related work expenses on IRS Form 2106  (http://www.irs.gov/pub/irs-pdf/f2106.pdf) or 2106-EZ.

Parents’ attendance at a disability conference. Here you may meet a lot of people who know better than to call you “lucky” for these deductions but your food and lodging are generally not deductible.

Sounds about right. They say the S&P will hit 2600 in six years. Alex will be 22.

The Regular Tiger

A little past 10 on Tuesday night Alex jackknifes up in his bed, throws down his blanket, looks at me, raises his arm and moans, “Tiger.”

“I don’t have it, Alex. Did you have it in here?”

Does he mean the $5, four-inch tiger or the $4, four-inch one with his (her?) head turned slightly to the right? Or the two-inch one that came in the Taiwan-made $1 set that also contained a little plastic lion, a jaguar and – ha ha – a zebra. A food chain for a dollar. Sometimes Alex’s thing for plastic animals is a real riot.

Sometimes. “Tiger? Aw, tiger.”

TIGER! He’s on his feet and lifting his mattress to peer under the bed and around the bedframe. “Aw tiger, tiger. A-ba-ba-ba!” Alex usually uses more words than this.

So do I. “Alex, I don’t have it and I don’t know where it is. You have to take care of your things, Alex. Where did you last have your tiger?”

“Ti-GER!” He’s back out to the living room, where I find Jill shoving her face under the couch and doing her part to erase what’s normal in our household. “I’ve gone through all the regular tigers,” she says. We offer them to Alex. This one? This one? “Aw, tiger.” Back to the bedroom where he goes over the bedframe one more time and starts looking under the radiator next to his bed.

“Alex, we will find it tomorrow. You have to go bed now. Here-” I switch on a flashlight and hand it to him. Alex has never used a flashlight. What a good parent to turn this into a teaching moment.

“Tiger…”

“Alex,” says Ned from the other bed beside us, “go to sleep!”

This tiger is going to be a bitch in the morning.

Alex has a ton of plastic animals – too many to keep straight, Jill thinks – standing at attention along the edges of almost piece of furniture in our apartment. The two-inch-long elephant on the edge of the dining room table. The pigs on the hutch, flanked on one side by the lion and on the other by the lioness. The big elephant, the rhino and the turtle. The plastic cat, the plastic salamander and otter and aardvark and chickens. Animals detailed down to the ruffles in the fur and the shine of the eyes as they stare at you.

Somewhere in their rows is Alex’s idea of order. Those with ASD may develop obsessions for several reasons, according to Great Britain’s National Autistic Society, including:

• obsessions may provide structure, order and predictability;
• special interests may be ways to start conversations and interaction; and
• obsessions may help people relax and feel happy.

Fine but not when the school bus is coming. On more than one school morning Alex demanded a lost plastic animal (Rhino! ‘potomos!) minutes before his bus pulled up. “Alex, come on!” “‘potomos!” In the lobby his hand would shoot up and he’d bolt for the elevator back to our apartment. If we even made it to curbside on those rotten mornings, he’d wriggle back off the bus and sometimes lay on the pavement of the street.

So, Wednesday. I turn on the coffee and wake him up. Maybe he forgot all about it overnight.

“Tiger? Tiger.” His arm is up as his eyes still squint with sleep. What’d Jill once say about this? Life comes to a halt.

“School, Alex, then tiger. You’ll find it when you get home. Mom’s working from home today and she’ll look for it.” Did he toss it out the window, I wonder? I show him the plastic cat, the big tiger, the little tiger, the other big tiger. Wrong. Wrong and wrong. You can’t fool him. Can’t reason with him, either.

“Aw tiger-” I actually get him into his hoodie, out the door and down to the lobby where we sit to wait for the bus. Find it tomorrow, mom will look all day, time for school when he snaps, “Aw elevator!” and he’s up and off.

Jill doesn’t seem surprised when we come back through the front door. “Kind of makes you want to die,” she says. Should we scream and yell? What happens if he does this again tomorrow? The next school day? For the rest of his life? It’s like a peek at living with an autistic adult who doesn’t, when we get right down to it, have to do a thing he doesn’t want to.

“We’re very unhappy with you, Alex,” we say. “Very unhappy.”

“Tiger? iPad?”

Well by god I haven’t lost that much sense as a parent. “There won’t be any iPad, Alex,” I say. “If you stay home today you will clean your room, do the laundry, wash the floor. We’re very unhappy with you, Alex.”

“Very unhappy with you,” he says back. Will he get the point? He has absolutely no reason to.

We call Abby, our neighbor who watches Alex after school and who’s built quite a connection with him, to see if she can help watch him during this day. She comes right up wielding what she seems to think is the answer: Alex’s plastic collie he left in her apartment on Monday. “Alex, is this what you mean by tiger?”

He stares at her as if he just watched somebody walk into a wall. “Tiger?” he says.

“He can be stubborn,” Abby says.

Defiance in an autistic child “is virtually a given,” according to an article on the subject at globalpost. “Autistic children, lacking the social and communication skills that most people use to solve problems, often spontaneously respond negatively to small conflicts. Sometimes it seems as if their defiant behaviors are planned but this is not always the case.”

I couldn’t say one or the other when he bolted moments before the bus came. My spontaneous response was to realize that Jill had to stay home today with him and I’d have to stay home tomorrow and what happened after that was up to Alex and our bosses.

At my desk at work, I keep thinking how he’s home but if I call to see how he is, no illness is the enemy this time. I don’t call. Instead I rehearse what I’ll say to him tonight: And you’re going to school tomorrow, aren’t you? … And tomorrow, school ... The bus is coming in the morning and you’re getting on it.

What will he reply? Repeat it back, which for some stupid reason I still take to mean agreement? Say, “I’m sorry, I’m sorry?” and pat my arm? Or just more “Tiger”?

No easing of my mind will come until Thursday morning at 7:25, when he climbs into that bus. Even then, how will I avoid thinking, What about the next day? All I can do is hope he just gets better.

(On Thursday morning Alex goes to school as if nothing happened. On Friday morning, he again refuses to go anywhere near our front door without a plastic animal. A chicken.)

This post is also available online in the Summer 2014 issue of Autism Spectrum News at http://www.mhnews-autism.org/back_issues/ASN-Summer2014.pdf#zoom=100

 (See the National Autistic Society’s writing on obsessions at http://www.autism.org.uk/living-with-autism/understanding-behaviour/obsessions-repetitive-behaviours-and-routines.aspx).

(Read the globalpost story at http://everydaylife.globalpost.com/defiant-behavior-autistic-children-16989.html).

In the Papers

 

Jill was awful mad yesterday morning. “I’ve asked you over and over to clean up your work area and do something about this pile on top of the printer,” said her voice on my cell phone. She was home, trying to print a label to ship a refund to some nutjob on eBay.

“I’ve asked you to do so many things you never do,” she said.

“Don’t make this more than it is, Jill.”

“I’m not making it more than it is.”

Maybe not (though I eventually discovered that her trouble stemmed from her plugging the cable into the wrong hole on my computer). “Pile” referred to an 8-inch skyscraper of papers, folders, envelopes, scraps, notes and hopes on white, red, yellow and green, among other colors, paper, written in ink, pencil, crayon and toner.

The pile is a stack of curling communications technology that makes me wonder if the system that coughs it out cares, when you get right down to it, what happens to Alex or they’d invest more money in talking to me. A stack of feelings I don’t want to face, most of those feelings also about as stable as the pile itself.

“Those papers represent that for me, too,” Jill says.

“The amount of paperwork generated by kids with special needs is astonishing,” writes Abby Perets, mother of five, in “How to Organize Paperwork” at SheKnows Parenting. “I store the medical records for four of (my children) in a single manila folder. Each child has two or three sheets of paper in that folder. Then,” she adds, “there is the file for my special needs son. His ‘file’ is actually a series of expandable pocket folders enclosed in a carrying case, a few binders and in his own drawer in my filing cabinet.

“It’s important to keep that paperwork organized, even though the task can seem overwhelming.”

Alex’s homework with pictures of a farmer on one page and, on the next, his unbelievably low scores on an IQ test. Summaries, opinions of professionals whose faces I can’t recall. Test results, crooked photocopies running on white paper like train tracks across snow. Applications for camps, respite programs, schools. Pronouncements about Alex from doctors’ offices and other entities that stubbornly (or because some lawyer told them not to) refuse to use email. (How come my typically developing son’s school uses email but Alex’s doesn’t?) Between jobs and kid stuff to read, sign or throw away, I wonder what I’ve finished even long after it is finished.

Coffee stains (hope it’s coffee …) on IEPs from the distant PAST. Fat packets from residential schools wanting to know about Alex’s medicine, diet, anger, birth, sex habits, wake-up time, education, pregnancies if any, interests, sensory issues and his father’s knowledge of punctuation (“Describe your child? … ”).

I kept most of this stuff in case we needed to build a legal case to get Alex cleared for a residential school. How am I supposed to dig Alex’s future out of such a pile? What do I know about documenting a legal case? Where did I read I was supposed to save all this paper and piss off my wife? I don’t like that the universe sent these papers my way.

This letter is in regard to Alexander Stimpson’s application for residential schooling.

Please complete the questionnaires in their entirety.

To expedite review of your correspondence, please include the following information.

The pile recruits from the normal. Our latest tax return’s here; before I stuff it into the top of Jill’s closet (while she’s not looking) to join 1040s from the Clinton years, I check the IRS site to see how long to keep old returns. I always thought seven years. The IRS says keep returns for six years at most (unless you’re a crook, in which case don’t listen to the IRS). If you didn’t file a return, says the IRS, keep it indefinitely.

How long do people whose sons can hold a conversation keep anything anymore? My wallet swells with ATM receipts. “It is a good idea to keep the receipts,” I read on some discussion board, “reason being that the dispensation from the ATM and the debit to the account are async process. There are multiple handshakes during this process between the hardware of the ATM, the software controlling the ATM and the core banking software. like any software programming, there are chances of errors, ie amounts being debit wrong due to bugs, or duplicate of transactions being posted.” Got that?

Jill tends to create more piles and address them faster. When Alex was still a baby living in the hospital, she rigged a half-dozen manila folders in a rack to process, and eventually throw out, paper from insurance companies. She luckily never confronted today’s blizzard of Explanations of Benefits from insurers.

“This is a not a bill!” it says across the top. “Payment Amt: $0.00.” Then why do I have to think about it? Don’t make this more than it is.

Samantha, autism mom writing on the blog Simply Organized, tells us about the labels on her special needs binder:

·        Contact Info for Therapists;

·        Current Therapy Schedule;

·        School District (this includes IEPs);

·        Assessment Results;

·        Medicaid;

·        Sample Medicaid application;

·        Evaluations.

Abby chimes in:

·        Start by simply gathering all the paperwork for your child. Anything related to your child’s special needs goes in the box. You’ll get a sense of how much you have and see that it can be corralled.

·        Find a safe place for the box, and when you think you've tracked down all your paperwork, give yourself another week (to find more).

·        Track down smaller boxes. You should have a sense of your categories, so you may be able to label those boxes already: insurance, school, state services, private therapy, medical bills.

·        Over the next week or two, work in 15-minute increments to sort your papers into boxes. Set a timer – don’t try to do everything all at once. Don’t worry about ordering documents, just sort. Put in 15 minutes once or twice a day.

·        Create digital copies.

Wastebasket to my right I sift and toss, read and toss, sift and read and toss for a 15-minute increment. Along the way I find an old copy of Elements of Style and a silver heart Jill bought for me a few years ago in Mexico. (“You never even unwrapped it!”). Out goes sheet after sheet.

I know I won’t need it. Why did I keep it? If I need it I can get a copy. Why did I keep it? For the same reason anybody keeps anything: No one told me what else to do with all this paper and still keep everyone safe.

(Read Simply Organized at http://besimplyorganized.blogspot.com/2012/10/organized-special-needs-paperwork.html).

(Read Abby’s complete entry at http://www.sheknows.com/parenting/articles/814462/create-an-organized-medical-file-for-your-special-needs-child-1).